Now we said it would be complicated…..

Look,

A life without using chemical substances is impossible virtually lets face it (coffee, steroid creams, painkillers etc) -and but a life without using ‘culturally unacceptable‘ drugs is the new fashion that has permeated the globe, reeking of neo conservatism and the judgemental vision of god. For a while at leas

I would really like to be listened to sometime about what I would like to help ME get my shit together. Because it isn’t because of drugs primarily (granted they can make it harder at times) it the curse of fucking life.

Life is a painful slingshot…. sitting there, waiting – it is all yours, in your sack you carry on your back, and you stand looking over the Mediterranean – it is your life, in your slingshot, and there you are, about to propel your dreams over the cliffs into eternity with the power of a gladiator of Greece (the Ancient Greece , you get me?) and love and beautiful things and words, and sharing and and , and….

I know what I want to say. Just because I am a person who doesnt get into the AA/ NA methodologies  Im not a person that thinks that mental health problems have no role to play in the lives of people who use drugs. Jeezus Christ it has ripped my eyes out of my head to see mental health problems being exacerbated by illegal drugs – but, just as -if not more importantly and statistically more predominant; the pharmacological contraindications….In other words, one pharmacists given drug interacting BADLY with another pharmaceutical drug.

Went I finally went to America, NYC 3 times just for short work calls sponsored by UNAIDS at the time (Thanks guys x) I was bowled over by the amount of INSURANCE, DRUG COMPANY, CAR COMMERCIALS. I could not believe what i was seeing. It just all rolled up into a ball and i became more scared than Id ever been. What sort of democracy is that? What SHIT is their global satellite companies going to spread to everyone else….What Murdoch bullshit, lies and propaganda next time. Lets just pray they are sweating in their beds and having sleepless nights -and have started taking pills to help them slepp, and then wake up…just a little one you know….

Recovery ain’t what i’m going to be doing, whether I stop using or not!

My life doesnt need your little ‘groups’ that you decide will work coz they have in the past. So has washing under your armpits!

I feel, to get to be useful with the ageing population of heroin and serious -and im gonna say it coz i can – hardcore’  old school older users over 50 odd, that we have in this county. That don’t use all that now of course, some still shock you though and binges are common – just like you were 27 again. But you ain’t. And we are dying from nobody really noticing that we are growing old – and some of, well, are in some serious states. Often alone.

 

I’m seeing a hell of a lot of medical problems come up that taking WAY too long to treat;  - considering they go to see a GP or clinic ever bloody TWO FUCKIN WEEKS to pick up their methadone prescription.

 

You know what we need? Mum and I talked about this is the car  just recently.

We need peer advocates (as they did Melbourne) that  could work with a team  at hospital ( in particular LIVER or HIV specific units) . This trained peer support located for special appointment days – someone located at a community health centre (or a drug centre I suppose seeing as we are so used to using them for anything and everything these days).

But someone – a trained peer or generally empathetic advocate -to go with you to doctors appointments, ask for information, be a record – advocate.

All these years later and we are still getting our medical issues ignored – yes because we want to ignore them too – but if some medic took a bit of care, took the time to ask questions, look like they cared, talked about your medical issues clearly, well, I guarantee that the person would show interest – and interest to look after their health.

But the fact is – when you have nothing and no one, its too hard to care about yourself. But thats why we need advcates. To go and pick up the person for their appointment, go with them, go into the drs with them, and keeps you from getting fucked over. Which can happen by busy drs who want the research but dont care at all about you.

Anyway, I was reminded by a brilliant Drug User Union that is doing exactly that! In a state in America – Ill find the link. I am sure there is more of you. Such a small thing to do could mean the difference between finishing or maintaining treeatment or not _ Hep C I mean but HIV will have different needs). Ill get the link and be back.

don’t mean to go on…..

 

 

 

Different perspectives on the Political Declaration on HIVAIDS 2011

Estimated number of people in the world living...

Numbers of people living with HIV in 2008

New York’s user led Harm Reduction Coalition runs a weekly podcast on a range of interesting subjects and during the High Level Meeting in HIV/AIDs that occurred in New York early June, Allan interviews several people (including myself) and gains a few different perspectives on just how people felt about the declaration and their input into it. Over to you Allan (text taken from the HRC podcast website)

High Level Meeting on AIDS: A report back from New York. A new Political Declaration emerged from the recent United Nations High Level Meeting on AIDS. This week’s podcast features interviews with participants in the meeting – Erin O’Mara from the International Network of People Who Use Drugs, Pablo Cymerman of Intercambios and Rick Lines from Harm Reduction International. The final Political Declaration is available here
Click here for the Podcast – no 33 

(The Harm Reduction Coalition has an excellent website, highly recommended and with good activist roots and the organisation is a definate contact point for any person who uses drugs when looking for drug related support in New York)

Peering at Peer Work from Prague…

Hiya,

Sending an update from Prague, having been attending a Correllation event based around peer work and peer support. A great focus for an event, and one that promised to include a deeper look into what peer work is, what makes it successful, the obstacles, why its important etc, with the aim of boosting it and outreach work in Europe. The title was ‘Stimulating Inclusion, Participation and Meaningful Involvement’ (European Seminar on Peer and Outreach Work).

The Czech Drug Situation…(A quick glance)

Anyway, having a quick squiz at the drug situation in Czech Republic on the way over, I was interested to learn a bit more about the Czech peoples relationship with amphetamines, which are apparently the drug of choice over here.  In fact, according to the EMCDDA’s 2010 report on drug use in Europe, the Czech Republic has the highest prevalence of amphetamine use in Europe at 3.2%, (Denmark comes a very close 2nd at 3.1% and then Estonia 2.5%…Ok ok, us Brits are in 4th place with 2.3%!!).

In any case, what is interesting is that its use has risen markedly since data started being collated in 2002. Most of it is methamphetamine in powder form, therefore it’s primarily injected in 90% of cases.  Many eastern and central European countries have seen recent surges in problematic amphetamine use and have been caught unprepared in how they should deal with it, with treatment systems largely organised to deal with opiate users.

It was kinda interesting also to note the Czech relationship with speed

Amphetamine, the prototypical releasing agent,...

Image via Wikipedia

going back to the 1950′s with a few pharmaceutical amphet based preparations proving the drugs of choice. Consumption greatly increased through the 60′s and 70′s until the ol’ meth labs appeared and took the place of the, now banned pharmy meds.

The 1980′s saw the expansion of meth users, mainly quite closed groups that grew up around meth dealers and production areas and by the end of the 80′s an estimated 25-30000 users were dependant on non alcohol drugs – principally pervitin (which is the name used for methamphetamine in Czech Republic and Eastern Europe).

Since 2000, pervitin use has grown beyond these small groups into the wider popluation and is now quite extensive in Slovakia as well. Just to round up, the EMCDDA report mentioned that the surge in pervitin use in Slovakia corrosponded with a drop in retention rates at methadone clinics from 77% in 1999 to 46%  in 2003 (quite a drop). This seem to show that opiate users were using pervitin as well, and were either getting chucked off the methadone clinics or leaving themselves. A change in the philosophy of the clinics whereby meth clients were not excluded from clinics but were given a low-ish dose of methadone (a max of 40mg) and were not required to become abstinent. This appeared to stop the drop in retention rates which, in 2008 improved to about 58%. (Perhaps something for the conservatives abstinence evangelists  to think about!)

Finally on the drugs front, just to throw in that methamphet is reported as the primary drug of choice by around 70% of those entering treatment and is also reported by opiate users as their secondary drug of choice – especially by those in methadone programmes. Searching for, no doubt, something to break the monotonous dullness of long term methadone use!

Back to the Seminar then!

We heard that the Czechs have around 10,000 problematic drug users in Prague, one of the lowest rates of HIV in Europe (although they have low rates of testing), approx 50% of opiate users are in treatment but they don’t have much involvement from drug users themselves in services, as peer workers etc (nothing new there then).

John Peter Kools, one of the conference organisers, urged us over the days ahead to find the similarities that bind peer workers and professionals, rather than the differences. He said he had seen the biggest changes happen when people have started to relate to others and searched for that common ground, finding that ‘win-win’ position. He assured us that it is an uphill battle and that wont change i soon; the political climate around Europe for small government (in other words – do it yourself!) is spreading fast and he mentioned specifically the situation in the UK where a new government policy document had just been written (The Coalitions new drug strategy) and the words harm reduction weren’t mentioned even once. Shocking, to be sure. He urged us to keep engaged because we could, indeed we have in some instances, lose precious hard won ground.

Rhythm and Pace.

Just a highlight from the first day, a speaker (actually from the UK) named Graeme Tiffany, who talked very eloquently about outreach work with young people about successful outreach being the matching up of the Romantic (of the era) and the scientific. He was very clear about such ‘hard to reach’ groups – are not at all that; in fact it is services that raise the threshold too high. So true! When you think about teenagers (and i was a drug using youngster!) – regulations are not of your language then – you need a service that keeps the bar low – that allows you to retain your identity, not one that trys to lift you out of your scene and strip you of what you feel is what protects you: your youth culture, your mates, your sense of belonging, all I think are felt so much stronger when your a teenager. He talked about the directives he gives when training youth workers now, after learning some fascinating work of an agency in Pamplona Spain that insisted its workers go out, and sit on the wall in the street (where the kids hang about) for 6 hours. It was called feeling the ‘rhythm and pace‘ of the community. That you need to stop and ‘feel’ the pace of things, the movement, you have to listen to the street. So often people sit in offices and very rarely go out and see and really feel the local street scene, or as is the case with outreach – rushing out of the office to hurry around the area doing ones ‘work’.

Then it is about ‘proximitie’ the french meaning – to be close enough to ‘hear the request’, hear what is being asked of you – not to think you know what someone needs and lumber in with ideas of what you think is important for them – you need to hear the request; when you have taken the time to tune into their space you will be asked and you will understand what they need from you. Then he talked of ‘accompagne‘ also in the french sense, which means unity and solidarity – to stand by and be with. It really was a wonderful ‘code’ by which to help outreach workers tune into their local youth scene.

Macedonia Rules!

A wonderful woman from Macedonia named Maria Tosheva from the Healthy Options Project in Skopje gave us some truly inspiring news about real peer involvement.

HOPs began as a user led initiative doing syringe exchange out on the streets of Skopje, despite harassment and suspicion from the local police and community. Hops has expanded enormously and become a service in its own right but it has retained its community members as being the most important part of the Hops team.

21 out of the 52 paid workers are drug users – a truly remarkable achievement we just done see replicated enough. Maria said that there is no real meaningful involvement of community members unless they are part of challenging the laws and creating the policies that affect them; changing the main obstacles that they face. She recommended that in order to support and foster this we have to invest in community groups, pay as equals, respect individual ambitions and preferences of those involved, and respect the need for members natural group development and structures; it is not always about the structures that you think will be most effective – you must listen and allow space for the natural development of user groups. Brilliant stuff – and what we KNOW to be true words spoken. Nice one Maria!

Ill end here and try and give an update on day 2, which had me a bit teary at one stage! I always write my blogs too long, hope you’ll forgive me readers. Until later,

Erinx

Follow

Get every new post delivered to your Inbox.

Join 122 other followers

%d bloggers like this: